Salisbury Foundation Trust

FOI_8501

Internal Reference Number: FOI_8501

Date Request Received: 05/03/2025 00:00:00

Date Request Replied To: 07/04/2025 00:00:00

This response was sent via: By Email

Request Summary: Friedreich Ataxia

Request Category: Companies



 
Question Number 1:
I have a freedom of information request regarding Friedreich Ataxia services in your organisation, could you please help by answering the following questions

Of all patients diagnosed with Hereditary Ataxia (ICD-10 Code G11), how many have a specific diagnosis of Friedreich Ataxia?

Q1a. How many Friedreich Ataxia patients have been diagnosed in the last 12 months?

Q1b. How many Friedreich Ataxia patients have had an appointment in the last 12 months in the following departments?

· Cardiology
· Neurology
· Neuromuscular
· Specialist movement disorders
· Any other department

Q1c. How many Friedreich Ataxia patients fall within the following age groups?

· 0-13
· 14-15
· 16-40
· 40+

Q1d. How many Friedreich Ataxia patients have you discharged in the last 12 months?

Q1e. How many Friedreich Ataxia patients have you referred to another specialist centre?



 
Answer To Question 1:
Please see our response to this FOI in the spreadsheet attached.




To accompany this answer to question 1 please also see the documents listed below:

 12817 - FOI_8501 - Friedreich Ataxia - FOR ISSUE.xlsx
 
Question Number 2:
Does your centre have a specialist movement disorders clinic?

· If so, how many patients with a diagnosis of Fredreich Ataxia have visited the clinic in the last 12 months?

 
Answer To Question 2:
Q2 - Yes we do, however none cover FA at the hospital.
 
Question Number 3:
Does your centre have a specialist Ataxia Clinic, as part of the specialist movement disorders clinic?

· If so, how many patients with a diagnosis of Fredreich Ataxia have visited the clinic in the last 12 months?
 
Answer To Question 3:
Q3 - No we do not.
Please see Attachments:
 
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