Sunday 05 May 2024
Internal Reference Number: FOI_7505
Date Request Received: 23/10/2023 00:00:00
Date Request Replied To: 09/11/2023 00:00:00
This response was sent via: By Email
Request Summary: Pandas (Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections)
Request Category: Private Individuals
| Question Number 1: i) Pandas (Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) ii) PANS (Paediatric Acute-onset Neuropsychiatric Syndrome) iii) immune mediated neuro behaviour conditions. - there has been a press release in February 2023, a copy is attached, it can also be found via the BPNA website (https://bpna.org.uk/?page=pans-pandas.) Following this update from the working group. Please could you provide me with the following: Tell me whether the Trust/ Hospitals treatment and diagnostic criteria has changed as a result of the working group statement. If it has, please can you send me the copies of the new policy/ procedure for treatment and diagnostic pathway. | |
| Answer To Question 1: No change to pathway on the basis of the BPNA document | |
| Question Number 2: i) Pandas (Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) ii) PANS (Paediatric Acute-onset Neuropsychiatric Syndrome) iii) immune mediated neuro behaviour conditions a) Please could you also provide for each condition or probable/ suspected condition i)-iii) above the number of paediatric patients presenting with these conditions for each year for the past 1 year? & b) how many patients were referred to another service outside of the trust. | |
| Answer To Question 2: a) Using the codes provided to us from our coding department for these conditions we have found 0 patients presenting with these conditions in the past year. b) We have found no evidence of any patients being referred outside of the trust for these conditions based on the codes received. | |
| Question Number 3: Please could you provide me with any minutes of meetings which decided how patients are treated following the British Paediatric Neurology Association update on the working group in February 2023 and who made the decision to implement any changes. | |
| Answer To Question 3: Not discussed in any SFT meetings however this has been discussed at the PIER meeting in July. Please contact PIER directly for minutes. PAEDIATRIC INNOVATION, EDUCATION & RESEARCH NETWORK - PIER Network Homepage | |
| Question Number 4: a) Whether the Trust/ Hospital has sought commissioning to treat this cohort of patients and b) who did it approach e.g ICB or NHSE and c) whether this was approved or rejected along with the reasons why or timescales for implementation if relevant. | |
| Answer To Question 4: No we have not sought to liaise with the ICB about the pathway | |
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