Thursday 29 October 2026
Salisbury Foundation Trust

FOI_9644

Internal Reference Number: FOI_9644

Date Request Received: 14/09/2026 00:00:00

Date Request Replied To: 30/09/2026 00:00:00

This response was sent via: By Email

Request Summary: Spinal Muscular Atrophy (SMA)

Request Category: Researcher




 
Question Number 1:
I have a freedom of information request related to the diagnosis and treatment of Spinal Muscular Atrophy. Your answers to the following questions would be greatly appreciated.

Question 1. Within your trust, how many patients currently have a diagnosis for:

SMA Type 1, aged less than 6 months (ICD-10 Code G12.0)

SMA Type 2, aged 6–17 months (ICD-10 Code G12.1)

SMA Type 3, aged 18 months–17 years (ICD-10 Code G12.1)

SMA Type 4, aged 18 years and over (ICD-10 Code G12.1)

SMA Unspecified (ICD-10 Code G12.9)
 
Answer To Question 1:
Please see our response to all questions in the spreadsheet attached.

To accompany this answer to question 1 please also see the documents listed below:

 13974 - FOI_9644 - Spinal Muscular Atrophy (SMA).xlsx
 
Question Number 2:
Question 2. Please provide the number of total patients, who have been treated in the last 4 months (May to August 2026) with the attached products:

 
Answer To Question 2:
Please see our response to all questions in the spreadsheet attached.

To accompany this answer to question 2 please also see the documents listed below:

 FOI 9644 Q2.docx
Please see Attachments:
 
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