Sunday 27 September 2026
Internal Reference Number: FOI_9511
Date Request Received: 03/07/2026 00:00:00
Date Request Replied To: 17/07/2026 00:00:00
This response was sent via: By Email
Request Summary: DS & LGS
Request Category: Companies
| Question Number 1: I understand the limitation of the ICD 10 codes in classifying Dravet syndrome and Lennox-Gastaut syndrome patients and that G40.3 and G40.4 will contain other epilepsies. I would like to submit a Freedom of Information request for the following data: The number of patients under the trust’s care with a recorded diagnosis of Dravet syndrome from January-June 2026. Likely coded as ICD-10 code G40.3 or SNOMED code 230437002. a) Patient numbers segmented by age: i. <2 years old ii. 2-8 years old iii. 9-17 years old iv. 18 years+ | |
| Answer To Question 1: Please see our response to all questions in the Excel spreadsheet attached. To accompany this answer to question 1 please also see the documents listed below:  13856 - FOI_9511 - DS & LGS - FOR ISSUE.xlsx | |
| Question Number 2: The number of patients under the trust’s care with a recorded diagnosis of Lennox-Gastaut syndrome from January-June 2026. Likely coded as ICD-10 code G40.4 or SNOMED code of 230418006. a) Patient numbers segmented by age: i. <2 years old ii. 2-8 years old iii. 9-17 years old iv. 18 years+ | |
| Answer To Question 2: Please see our response to all questions in the Excel spreadsheet attached. | |
| Question Number 3: The number of patients under the trust’s care who have been treated with fenfluramine from January-June 2026 a) Patient numbers segmented by age: i. <2 years old ii. 2-8 years old iii. 9-17 years old iv. 18 years+ b) For these patients, how many of them had a diagnosis of Dravet Syndrome (ICD10 Code: G40.3) SCTID: 230437002. Patient numbers segmented by age: i. <2 years old ii. 2-8 years old iii. 9-17 years old iv. 18 years+ c) For these patients, how many of them had a diagnosis of Lennox-Gastaut syndrome (ICD10 Code: G40.4) SCTID: 230418006. Patient numbers segmented by age: i. <2 years old ii. 2-8 years old iii. 9-17 years old iv. 18 years+ | |
| Answer To Question 3: Please see our response to all questions in the Excel spreadsheet attached. | |
| Question Number 4: 4. The number of patients under the trust’s care who have been treated with cannabidiol from January-June 2026 a) Patient numbers segmented by age: i. <2 years old ii. 2-8 years old iii. 9-17 years old iv. 18 years+ b) For these patients, how many of them had a diagnosis of Dravet Syndrome (ICD10 Code: G40.3) SCTID: 230437002. Patient numbers segmented by age: i. <2 years old ii. 2-8 years old iii. 9-17 years old iv. 18 years+ c) For these patients, how many of them had a diagnosis of Lennox-Gastaut syndrome (ICD10 Code: G40.4) SCTID: 230418006. Patient numbers segmented by age: i. <2 years old ii. 2-8 years old iii. 9-17 years old iv. 18 years+ | |
| Answer To Question 4: Please see our response to all questions in the Excel spreadsheet attached. | |
| Question Number 5: 5. The number of patients under the trust’s care who have been treated with cenobamate from January-June 2026 a) Patient numbers segmented by age: i. <2 years old ii. 2-8 years old iii. 9-17 years old iv. 18 years+ b) For these patients, how many of them had a diagnosis of Dravet Syndrome (ICD10 Code: G40.3) SCTID: 230437002. Patient numbers segmented by age: i. <2 years old ii. 2-8 years old iii. 9-17 years old iv. 18 years+ c) For these patients, how many of them had a diagnosis of Lennox-Gastaut syndrome (ICD10 Code: G40.4) SCTID: 230418006. Patient numbers segmented by age: i. <2 years old ii. 2-8 years old iii. 9-17 years old iv. 18 years+ | |
| Answer To Question 5: Please see our response to all questions in the Excel spreadsheet attached. | |
| Question Number 6: 6. The number of patients under the trust’s care who have been treated with rufinamide from January-June 2026 a) Patient numbers segmented by age: i. <2 years old ii. 2-8 years old iii. 9-17 years old iv. 18 years+ b) For these patients, how many of them had a diagnosis of Lennox-Gastaut syndrome (ICD10 Code: G40.4) SCTID: 230418006. Patient numbers segmented by age: i. <2 years old ii. 2-8 years old iii. 9-17 years old iv. 18 years+ | |
| Answer To Question 6: Please see our response to all questions in the Excel spreadsheet attached. | |
| Question Number 7: The number of patients under the trust’s care who have been treated with stiripentol from January-June 2026 a) Patient numbers segmented by age: i. <2 years old ii. 2-8 years old iii. 9-17 years old iv. 18 years+ b) For these patients, how many of them had a diagnosis of Dravet Syndrome (ICD10 Code: G40.3) SCTID: 230437002. Patient numbers segmented by age: i. <2 years old ii. 2-8 years old iii. 9-17 years old iv. 18 years+ | |
| Answer To Question 7: Please see our response to all questions in the Excel spreadsheet attached. | |
| Please see Attachments: | |
| To return to the list of all the FOI requests please click here | |
Our staff at Salisbury District Hospital have long been well regarded for the quality of care and treatment they provide for our patients and for their innovation, commitment and professionalism. This has been recognised in a wide range of achievements and it is reflected in our award of NHS Foundation Trust status. This is afforded to hospitals that provide the highest standards of care.
